Are you scrounging for thankfulness this holiday season? Holidays can be a challenge for those walking through hard days. Perhaps you feel like you've been handed the short-end of the stick; your child is struggling, you’re exhausted and it seems like everybody else has life with a bit more gravy. It’s easy to focus on our circumstances, take stock of what we have and where we are and end up feeling completely void of thankfulness. Is there a cure for this?
I first suspected I had ADHD as a teenager, but finding the right professional to take me seriously was much harder than I expected. Previous attempts only ended in frustration and tears.
Enjoying the holidays with a food allergy sounds like an oxymoron doesn’t it? After all, eating together is an integral component of the holiday season. I looked forward to making our traditional holiday foods until I was diagnosed with a dairy allergy in 2012. What was to enjoy about the holidays when the foods associated with it were off limits to me?
It was a short, ten-minute drive from the hotel to the residential facility. I maintained composure while I navigated the busy public roads, and then residential streets. I had a whole range of emotions racing through my body, mind and spirit as we pulled into the campus. This was not just a pleasure drive or a routine errand, this was a significant milestone in the life of my son and our family.
While Halloween is a fun time of year for many children, it can be a really difficult time for some, including many children with additional/special needs. For them it can be a confusing, anxiety-inducing, or even utterly terrifying time. But it doesn’t have to be like that. If we stop for a moment to think about the things they might find hard and how to put things in place to help them, children with special needs can safely join in the fun, too. So what are some of the things about Halloween that children with additional needs can find hard?
Parents of children with disabilities face unique challenges that can make the journey of parenting even more demanding. While advice like “practice self-care” is common, it doesn’t always provide the deep, meaningful support parents truly need. So, here are some unique and uncommon ways to find joy and strength as a parent.
“My daughter has changed so much in this area during her 18 years of life. It’s progress, and it’s a small thing that I appreciate as her mother now. During those years when it didn’t go well, they were hard. Haircuts haven’t been the only area of growth. I recall being completely anxious every time I left the house with my daughter alone as she would run off and not respond to my pleas to stop. The running off and the anxiousness eventually stopped, but life was hard until then.” Evana Sandusky
Like a new outfit that looks crisp and sharp or an old outfit that is so worn out it’s comfy and we wear it all the time….is often how we wear the banner of the special needs journey. How does it look on us? On you? Is our attire crisp and sharp or rather worn out? Cindi Ferrini writes on how YOU wear special needs and caregiving.
Over the years, I have been through multiple seasons of planting and harvesting skills with my daughter. My daughter is now entering adulthood with disabilities. There are still skills that she needs to develop to make her life easier. The learning does not stop as she ages, however, the pressure I put on myself all of those years is gone. I don’t need to fix issues. I simply need to support her through them. Evana Sandusky writes on her daughter’s growth through the years and likens it to planting seeds and yielding the harvest.
Raising kids with disabilities comes with its own set of challenges and reasons to be grateful. Because this is EA/TEF Awareness Month and our son was born with EA/TEF, my top ten perks of raising a child with disabilities will be slanted in that direction.
