The lessons I learned while raising a child with EA/TEF have been many and varied. That’s to be expected since our son was born in 1982 with esophageal atresia (EA) and a tracheoesophageal fistula (TEF), two conditions that left him unable to swallow and required immediate surgery. Many of the lessons came about as a result of the surgeries and invasive procedures he endured between birth and age 5. Other lessons came later as he became more independent in adolescence and adulthood. I encourage you to use these ten lessons as a springboard for considering what you’ve learned as well.
Counting the Cost
When Thankfulness Seems Impossible
Are you scrounging for thankfulness this holiday season? Holidays can be a challenge for those walking through hard days. Perhaps you feel like you've been handed the short-end of the stick; your child is struggling, you’re exhausted and it seems like everybody else has life with a bit more gravy. It’s easy to focus on our circumstances, take stock of what we have and where we are and end up feeling completely void of thankfulness. Is there a cure for this?
Discovering What God Already Knew About Me, Through My Children’s Diagnosis
Finding Joy and Strength as a Parent of a Child with Disabilities
Parents of children with disabilities face unique challenges that can make the journey of parenting even more demanding. While advice like “practice self-care” is common, it doesn’t always provide the deep, meaningful support parents truly need. So, here are some unique and uncommon ways to find joy and strength as a parent.