Margaret Vasquez explained that emotions aren’t who we are. Rather, they are similar to physical sensations. When we feel something hot, cold, sharp, or painful, our bodies are alerting us to approach with caution something in our environment. When we feel emotions––big and small––our mind is alerting us to something internal that deserves our attention.
The world might seem to have a lot to offer, but as it applies to the caring of a child or loved one with special needs, it offers us things that won’t make us happy and won’t deliver what we need. The world will always lack authenticity and the act of serving will not be very high on the rung of the ladder, by world standards.
God convicted me. He challenged how much I believed it. What would my and my husband’s actions tell us? Were we believing God for His plan for our son, or were we expecting Him to help with ours? Were we open to the possibility that His plans might be different from what we’ve envisioned?
Did I trust God’s plan for the life of my child with disabilities? Did I trust God’s plan for the life of my child with disabilities during his frequent medical crises as a baby? Did I trust God’s plan for the life of my child with disabilities when he was a young adult? Do I trust his plans now?
When we care for our child(ren) with special needs, it’s self-sacrificing. It is more than a “job” as some might say, it is an undertaking (as one of my friends shared so succinctly with me). Yet some of us have a different level and depth of care. Although our son needs 24/7 attention and care, he can do a good number of things on his own. Cindi Ferrini shares the difference between Self-less and Selfless.
Even after many years as a special needs momma, having people say the strangest things to me, this question posed to me last week really caught me off guard. “How can you smile? With so many problems!” Her tone and the question made me really defensive. Having had a few days to reflect, I want to respond to her question by sharing my top five answers.
As a believer, I know that the future isn’t set by what the prognosis or diagnosis says; it isn’t hopeless based on the past. No matter how many times letter recognition or counting have remained elusive skills for my son, I can enter a new year with a fresh hope. I open my eyes fully to see God’s glory and the ever-present potential for miracles.
