Seasons help us to realize we’re not alone. We might still feel alone but we can see things differently and then change our thinking, and even our responses. We know everyone goes through “stuff” but sometimes we need to recognize it just happens to be our turn. The harder part is that we still have someone we are caring for full time, 24/7 added to the new hard stuff!
For families like mine, with an autistic child and my own ADHD and anxiety, Christmas is rarely “calm” or “bright.” In fact, it is often loud, noisy, and overwhelming. Our children get overwhelmed by the lights and the new items. We, as parents, get overwhelmed by all the mess and noise. There are so many sensory inputs flowing through that you feel like you are in a never-ending vacuum of noise. And, that doesn’t even take into account that I’m operating on just a few hours of sleep after leading multiple Christmas services as a pastor.
Ruth saw a bright future for herself. She didn’t have an exact plan in front of her. But at 18, she vaguely knew what she wanted in the future: a master’s degree, a husband, a job she enjoyed, and children. Emma was on another path altogether. When Emma turned 18, she was already enrolled in a school for students with more significant disabilities.
Zechariah, despite being visited by an angel, doubted what he had been told, and so Gabriel told him that because of this doubt, Zechariah would not be able to speak until his son was born. So, he became unable to speak, and therefore unable to communicate through speech. What did he do? And what does his story teach us about people who cannot communicate by speech, or choose not to, today?
There were young kids, teens, young adults, even his best friend, all playing together, learning and laughing. But, there was no sign of my child. I searching the parking lot where everyone was talking and hanging out with their families; not there either. Here is where most people panic. But, deep down I knew; look with the younger kids. It was there I found him, rolling down the hill, filled with that bold childhood laughter, having the time of his life. No pressure here. No one asking him to make quick decisions he had to worry about in that football game. There was only freedom and joy. I want him to be something he isn’t sometimes, but I’m learning to start finding the thankful in disability.
I started dreaming the day I found out I was having my first baby. As we made preparations for her birth, I enjoyed reading different pregnancy books. By the time we took Jaycee home from the hospital, I had armfuls of pamphlets, books, and resources on Down syndrome. I read as much as I could to find answers to many questions, and here’s where I found them.
My daughter is a gifted communicator even though she rarely speaks in sentences. “Mom” is one word that has a multitude of meanings. There’s one version of my name that I hate hearing, the one that conveys to me that she is upset or scared. As she yells “mom,” I often cry out to God in those moments, too.
All life is God-given and is to be celebrated. There was a time long ago that I lost sight of this perspective. God patiently waited for me to look past the words of a diagnosis to see my daughter for who she was created to be. On this World Down Syndrome Day, I appreciate all the time I have spent raising my child with Down syndrome.
