Margaret Vasquez explained that emotions aren’t who we are. Rather, they are similar to physical sensations. When we feel something hot, cold, sharp, or painful, our bodies are alerting us to approach with caution something in our environment. When we feel emotions––big and small––our mind is alerting us to something internal that deserves our attention.
The world might seem to have a lot to offer, but as it applies to the caring of a child or loved one with special needs, it offers us things that won’t make us happy and won’t deliver what we need. The world will always lack authenticity and the act of serving will not be very high on the rung of the ladder, by world standards.
God convicted me. He challenged how much I believed it. What would my and my husband’s actions tell us? Were we believing God for His plan for our son, or were we expecting Him to help with ours? Were we open to the possibility that His plans might be different from what we’ve envisioned?
Did I trust God’s plan for the life of my child with disabilities? Did I trust God’s plan for the life of my child with disabilities during his frequent medical crises as a baby? Did I trust God’s plan for the life of my child with disabilities when he was a young adult? Do I trust his plans now?
When we care for our child(ren) with special needs, it’s self-sacrificing. It is more than a “job” as some might say, it is an undertaking (as one of my friends shared so succinctly with me). Yet some of us have a different level and depth of care. Although our son needs 24/7 attention and care, he can do a good number of things on his own. Cindi Ferrini shares the difference between Self-less and Selfless.
There are dozens of things we’ve incorporated into our household, lifestyle and daily rhythms over the years that have helped maximize my “autopilot mode.” Let’s be real. Autopilot is a form of rest when it comes to caregiving. The “efficiency geek” in me seeks out routines and conveniences that allow me to slide through the rigors of caregiving with as much ease as possible. Today, I’m sharing some of the much-appreciated amenities at our house.
This post is for all my fellow veteran special needs parents, those of us who’ve been doing this for a little while and are finding a groove that works. There is a danger in being really good at our journey. The danger is that we forget to be wholly dependent on the Lord, His spirit and His leading in our choices, plans and decisions.
