My daughter arrived in the Intensive Care Unit (ICU) in the middle of the night on the eve of Thanksgiving. A tough respiratory virus attacked her lungs, and she needed a substantial amount of oxygen support. And now, this unexpected illness meant Thanksgiving was going to be completely different than we had all planned.
Are you scrounging for thankfulness this holiday season? Holidays can be a challenge for those walking through hard days. Perhaps you feel like you've been handed the short-end of the stick; your child is struggling, you’re exhausted and it seems like everybody else has life with a bit more gravy. It’s easy to focus on our circumstances, take stock of what we have and where we are and end up feeling completely void of thankfulness. Is there a cure for this?
I first suspected I had ADHD as a teenager, but finding the right professional to take me seriously was much harder than I expected. Previous attempts only ended in frustration and tears.
Enjoying the holidays with a food allergy sounds like an oxymoron doesn’t it? After all, eating together is an integral component of the holiday season. I looked forward to making our traditional holiday foods until I was diagnosed with a dairy allergy in 2012. What was to enjoy about the holidays when the foods associated with it were off limits to me?
It was a short, ten-minute drive from the hotel to the residential facility. I maintained composure while I navigated the busy public roads, and then residential streets. I had a whole range of emotions racing through my body, mind and spirit as we pulled into the campus. This was not just a pleasure drive or a routine errand, this was a significant milestone in the life of my son and our family.
I am no stranger to struggles as someone raising a child with special and medical needs. It is easy for me to downplay the degree to which I am mentally struggling. But I now see that when I claim to be fine when reality suggests otherwise, that’s an unhealthy denial. Here are four signs that my struggles are not “fine,” and some things that have been helpful for me, when I acknowledge these symptoms.
I am exhausted, moody, yet eager to soak in what could be the last nice day of autumn. I hear Joel’s footsteps quicken and turn to see him approaching at a near-run. He grabs my hand, looks me in the eye, grins, and pulls me forward. I wait for him to drop my hand, as he always does, but instead he squeezes it and swings my arm, his grin widening at my delight. For a moment, it feels so right, his hand a perfect fit in mine.
This text was the first in a long thread to lighten my spirit. The thread began the day before when a couple in our church small group sent devastating news about the death of their grand-baby. We responded with pandemic-style support—text messages—and then the response from a mother in our small group who had lost a baby many years ago.
Acceptance is a word that has several meanings, and which can mean different things to different people. Within the context of a blog about children and young people with special needs, these meanings can be complex and very individual. But the meaning that I love the most is the meaning that Jesus brings to it, the example He gives us about how we should accept each other.
