My daughter arrived in the Intensive Care Unit (ICU) in the middle of the night on the eve of Thanksgiving. A tough respiratory virus attacked her lungs, and she needed a substantial amount of oxygen support. And now, this unexpected illness meant Thanksgiving was going to be completely different than we had all planned.
Are you scrounging for thankfulness this holiday season? Holidays can be a challenge for those walking through hard days. Perhaps you feel like you've been handed the short-end of the stick; your child is struggling, you’re exhausted and it seems like everybody else has life with a bit more gravy. It’s easy to focus on our circumstances, take stock of what we have and where we are and end up feeling completely void of thankfulness. Is there a cure for this?
I first suspected I had ADHD as a teenager, but finding the right professional to take me seriously was much harder than I expected. Previous attempts only ended in frustration and tears.
Enjoying the holidays with a food allergy sounds like an oxymoron doesn’t it? After all, eating together is an integral component of the holiday season. I looked forward to making our traditional holiday foods until I was diagnosed with a dairy allergy in 2012. What was to enjoy about the holidays when the foods associated with it were off limits to me?
It was a short, ten-minute drive from the hotel to the residential facility. I maintained composure while I navigated the busy public roads, and then residential streets. I had a whole range of emotions racing through my body, mind and spirit as we pulled into the campus. This was not just a pleasure drive or a routine errand, this was a significant milestone in the life of my son and our family.
Over all of those years I’ve had a Swiss Army knife, I’ve used it a lot, or rather I’ve used most of it a lot.There’s a tool on it that I hadn’t used so much; in fact, I wasn’t even sure what it was for. As I thought about this some more, I realized that the Swiss Army pocket knife, and the particular tool I was looking at, makes a great metaphor for many of us who care about children and young people with special needs or disability.
A sunbeam, streaming in through the kitchen window, rests on Joel. Light shimmers around him. As the music plays, he slowly looks around the table, looking each of us in the eye with his beautiful, baby blues. (Who says autism means no eye contact?!). His grin says it all: I have a gift for you! Please listen!
When guest blogger Jess Ronne and her husband met, they were both widowed with seven children between them, including Jess’s son with special needs. Through their nine years together, Ryan and Jess have learned a few important skills—life hacks, some might say—while navigating the complicated terrain of special needs parenting in a blended family. Here are seven practical ways they’ve been able to make it a successful endeavor (most the time).
The orchard was heady fare for a midwesterner eager to escape an Iowa winter for a week. I walked around in shirtsleeves and sandals, admiring trees laden with yellow and orange fruit. I breathed in the tang of fresh citrus. Even so, part of me was ready to return home and resume interviews with parents raising kids with special needs and disabilities for a book proposal about stress and compassion fatigue in caregiver. Talking to these families, on the phone or in video chats, has been as sharp and delicious as an orange eaten in a citrus grove.
